I should have written before now I am looking for a part time job. I am going to have 3 tests done in the next 2 weeks MRI and CT Scan and ultrasound on my kidneys — I have CKD AND My kidney function is down to 35% from 50% last November. I have had all teeth pulled and they are making my dentures and I have to pick them up soon.
I will be writing again soon.
I have had an aftercare visit with my neurosurgeon. Dr. Apfel and she was pleased with the last MRI. I was sans any new tumors and she had removed the 30 that I had. I am down to one anti/convuslant — Keppra – and i am still going to be blood thinners for a couple of more months then will do another test to see if DVT has completely dissolved. So now I have a regular neuro Dr. and she said that since I have had invasive brain surgery twice I am at risk for strokes and seziures. So i wantd to let everyone that follows the blog i am doing so much better than 3 months ago Now focus is having teeth fixed then next will be knees. With follow up MRI late Jan and follow up in Feb. I hope that it will be clear don’t want to zapped with laser but that is better than some opening your head. Not good to have them messing in you frontal lobes messes with your judgement feelings can hurt before you can stop it. Great news I can drive again
Suzy
Been a great week ordered and received Bob Segar Hoodie and L/S T-shirt yeah ready for fall/ winter when I can get out and be free. Taking therapies to help with strength and cogintive ablity so I can drive again. However that is not the reason I am giving up some back story.
I was born in a small town in Southwest Virginia about an hour away from Roanoke Va. I had an audience for my birth — student nurses and I had a very loving grandparents on my maternal side of the family.
It was first but not last Military Funeral I was not with my uncle when he passed he sat down to tie his shoes and they said that he had a heart attack. When the military men did the 21 gun salute it just tore me up. when I was very young I lived with differnet brothers and my grandparents until I was about 6 years old. I lived with Benny and his wife Wanda in N.C. for a couple of years. I will have to tell those tales later some funny some scary. My older Tuffie was always with me and that helped a lot however the older we became the farther apart we became. He died of cancer in 1992 my father died in 2015 and my sister mary 2016. Then I had 3 cousins die between 2011 and 2020. I lost my mother in december 2020 Covid related double pnemonia but she had many other probems too. Going back to 2015 december my dad passed away and buried in the veterans cementary and then 2020 my mother passed and she was buried above him in same plot. My dad I loved him after I got over how misogynist he could be — another post I will tell you how hard it was to get his attention because I was in band and chorus and played panio for years. I am sure this was long and boring and I needed to get out. thank you for reading to the end.
SUZY
I was getting discourged around the 4th of July so I went to YouTube and starting listining to Bob Segars greatest hits album and then I decided to make a comment on that page — usually I dont bother but I was already signed in. I went to listen to the album again and I noticed I had a comment under the comment I had left. I open it up and read it and it was from Bob Segar. I was very excited to say the least it made my month — hell made my year so here is
I had the pleasure of seeing him in concert in 1983 in Roanoke, one of the last ones he did there. He is the only person I would pay to see or hear. His songs have more meaning today than other performers. listening to like a rock– that song means a lot to me–20 years where did go shivers up my spine his reply
1 week agoThanks for all the love and support. Seriously blown away by the love from all of you.thank you
like I said this blew me away
Suzy
update — went to Dr today no driving for 6 months after seizure activity so if I don’t have another one I should be driving first part of October will be having more physical therapy and some speech therapy along with a drivers evaluation in September. also going to talk to dietician to start process for gastric bypass surgery. I am also going to get my teeth fixed and loose weight and have knees replaced. DR’s are waiting for the MRI end of July to decide if I will have either radiation or gamma knife treatment. my tumors have went to grade II atypical from grade I benign type its scary so pray for me please. they could become cancerous… so keep me in you prayers because I have met someone that makes me very happy again grade III is malignant so fingers crossed the radiation or laser knife clams these puppies down because I have had a litter of them in my head. Will update again hopefully first part of august. Cant promise anything
+well this is a short update out of the hospital on the road to recovery. Having post MRI end of July.
Scared my family I was out for 2 weeks in coma woke up to a bruised chest where medical personal would come in a poke me to try and wake me. Right now I did not have to have extra radiation treatments which is good since i cannot drive myself for a while. Due to different medications I have lost all skills my youngest son is living with me and helping me out. my step daughter is a RN she helps when she can but works out of town. I have 3 more things I want to accomplish 1. get teeth fixed 2. lose weight (may need GBS) 3. Have knees replaced– they are really bad. I feel I am too young to be house bound handicapped person. I am nothing but determined to overcome these obstacles
High everybody, I have had a lot happen to me since I last posted. my husband Gary passed asway on the day after Christmas 2018 of infection lining the heart. The heart problems started in late July when Gary could not walk due to fluid in his legs had him swollen so bad that we took him to the local ER and they did tests and determined his heart was really bad blocked and then congestive heart failure, he had triple bypass in august and ended up staying in hospital for 30 days he heart was so week he was sent home on IV meds since none of the current pill meds could keep his heart in rhythm, his heart was only working at 15%
So the doctors wanted to put an LVAD on his heart but before the surgery he contract the infection on his heart valve and his heart was too week to fight off the infection. He chose not to use life prolonging measures and I had to go along with that and I was at his side on the 26th when he left this world. My youngest son lives with me and helps me. I have really bad knees and my tumors came back in Feb. 2020 so I had laser surgery again. As of my last MRI I have another tumor growing so I may have to have invasive surgery –so on top of this I get covid with double pneumonia and was in hospital 10 days and my 84 year old mother got it also and died on Dec 11 2021. She had other problems that made it hard for her to fight the covid I am out of the hospital 2 months and just starting to feel better I still have brain tumor to face and getting my weight down to have knee surgery that is the hardest since I cannot work part-time anymore. I know that others have had just a bad time if not worse than me. I know I miss my day he use to pray for me everyday. believe me please take covid seriously because it is real and hard to get over I had a great medical team in the hospital and that really helped. and the ladies that write fanfiction helped me also especially Carroll E Stewart I love her stories and reread them all of the time. I have an appt. with neurosurgeon on march 1st will try to update after visit.
Just trying to figure this out using my kindle fire. I want to start blogging on different items and situations I see all the time. No first of the month whack a grannies at Wal-Mart stories those are played out on my facebook page. Besides most all of my friends there are my family and some non related friends. There’s also the wonderful fanficton groups I belong to. I am not going to comment on politics because this is just going to be my skewed view of the place I inhabit and the bits and pieces floating me and my family. I hope you find it funny and maybe sarcastic to. So here is the introduction of this year long commitment at least once a month until next February. I have one disclaimer if you find that what you are reading just sucks then say it sucks then let it go free will. Ok till next time -Suzyq
Well this time last year we were up to at least our knees in snow. Now I am running around in short sleeves and a hoodie. I have to say that the last couple of months have been a cement mixer of emotions. Now I am happy to say I did not start back smoking so this is my first anniversary. Go me lol on the health front caught a nasty cold/bug from my daughter so I have been using my non invasive machine a lot the past two weeks and it is worth it. With some other meds I remain hospital free also had mammogram and came back ok. My Dr has me on diabetic meds – oral ones not having to use insulin right now. Working on weight and blood pressure and they are slowly dropping so there is hope for me. In March I will be going to see Cinderella the Rogers and Hammerstein version. There is a business that brings in Broadway plays to our area of course the only time I have seen the other versions were on tv and DVD–Julie Andrews version and of course the television versions with Lesley Ann Warren that was a yearly event when I was young. Also the version with Brandy and Whitney Houston was awesome. As you can see Cinderella is my favorite princess (fairytale) and I may one day have a blue ballgown to try on. I hope that this post makes sense I am sending it from my kindle today. Thank all the wonderful writers that I follow I have been in reading heaven. So I will go for now. But I will have more this spring as my 20th wedding anniversary is coming up with my best ride and die Gary. Enjoy warm weather if you have it because the cold will be on its way.
First I want to thank everyone that is following me. I know I have not posted much but I will try to do better. Here is a little update on what is going on with me and my family. I do have one request My husband and I are going to have our 20th anniversary coming in April and I racking my brain for what type of gift. I googled 20th anniversary and it stated that China was the gift. If any of you can give me a suggestion I would appreciate it. He really loves classic cars the most and does not follow any sports teams at all. I have some time it is not until the end of April. So on to the main event 🙂
Well this is busy month for us and it is not Holiday fun at all. It is the month of Doctors and procedures. Starting on Friday I get the birthday gift that keeps on giving an MRI yes I get to have my head dyed and blasted by magnets. I did find out that the screws from my brain surgery does not effect the procedure. We clean the building where this MRI is housed and you have to watch a video and you cannot wear jewelry anywhere near it. I did tell Gary that I did not want to clean that section since I had to go there for my tests one nice advantage to being married to your boss at work. So I clean the third floor which consist of –The old people center, infectious disease and pulmonary. It is not too bad but I digress as usual. So Friday – test Monday Dr will give me results of test — Tuesday — Sleep apnea Dr and Wednesday it is Gary and the eye Dr so Thursday — break and then Friday a Mammogram for me not Gary (he-he). Then it will be just regular stuff until the holiday and then I have an eye exam the day before New Years. This month will be rough anyway since it the first anniversary of Dads death:-( On the lighter side the landlord is replacing our crumbling back porch with a deck and the contractors are older gentlemen and one smokes cigars (glad he is outside) The first day it was a jackhammer to the concrete and today it is a loud drill. However the dogs have stopped reacting to this (no barking all day long) So everyone stay warm this weekend– if you are not in Florida Yeah you Debbie 🙂 I am hoping that I am free of new tumors and the old ones have shrunk even more. Will give up date next week. Bet you can’t wait 🙂 Also I have still not smoked since last January (yes) The machine I use at night really helps with my COPD and I have also lost around 25lbs since August. I think that since I am actually getting REM sleep it has helped me with my energy levels Duh right. As I said before I will try to update more.
Suzy
suzyq591 